As many frequent readers of this blog are aware, I’ve more or less diarized my experience with rare neurological deafness diseases: SSNHL and hyperacusis since my seizure during a final job interview on 2/17/2011. Even though I was in perfect health, a neuron from my inner ear died. The result is a quirky deafness where sound is my enemy and I suffer from tinnitus, vertigo, imbalance and basically the end of my life as I knew it.
Miraculously, I survived to celebrate the 3rd year of SSNHL and hyperacusis. This is something I’m proud of, especially since there’s a high suicide rate among people with hyperacusis. I believe it may have something to do with the fact that relatively few doctors ever heard of hyperacusis and treat patients as if they’re mentally unbalanced, stressed out, post-menopausal hysterics.
If it weren’t for the medication I recently take (experimental as to effectiveness), I wouldn’t be able to leave the house at all. I was pretty much a shut-in for 2 1/2 years. Only my closest friends understood what I have because they witnessed firsthand how I react to sound.
Everyone else, though, thought I was FULL OF SHIT. Including my ENTs.
I wrote ad nauseum in my other blog posts about what I underwent so I won’t bore you, dear Reader, to death. However, someone sent me the article below about hyperacusis sufferers. The people in the article got their hyperacusis through noise abuse unlike me who got it through a disease. But I’m grateful that ABC TV showed it on their 20/20 program. Something I never saw as the sound from tv annoys the crap outta me.
Suddenly, people have contacted me with the underlying subtext: You’re NOT FULL OF SHIT!
Well, fuck all of you!! I never lied about what I had. And I’m NOT FULL OF SHIT!
Still, *sigh* I feel vindicated.
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